THIS PODCAST CONTAINS LANGUAGE AND CONTENT SOME PEOPLE MAY FIND OFFENSIVE. THE VIEWS EXPRESSED IN THIS EPISODE ARE THE OPINIONS OF THE HOST AND GUESTS.
Welcome to series two of #ToppleUncaged!
Every week, The Canary will be bringing you a new podcast on the media landscape; hosted by me, Steve Topple.
In a special episode, I focus on several under-recognised, often misdiagnosed and sorely misunderstood illnesses.
Samantha was living with a rare sub-type of the genetic connective tissue disorder Ehlers-Danlos syndrome (EDS). But more than this, she had craniocervical instability (CCI) and tethered cord syndrome. The severity of the CCI meant she had weeks to live. So, she started fundraising to have life saving surgery in the US. But this was just the start of her story, which by anyone’s standards is remarkable and shocking in equal measure.
So, I caught up with Samantha for the #ToppleUncaged podcast. We talked about her medical journey, the lack of awareness and treatment available on the NHS, the stigma surrounding some chronic illnesses and the charity she is in the process of launching.
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LISTEN TO MORE EPISODES AND INTERVIEWS FROM THE #ToppleUncaged PODCAST: