CanaryPod: #ToppleUncaged meets… the Millions Missing: Dr Myhill

THIS PODCAST CONTAINS LANGUAGE AND CONTENT SOME PEOPLE MAY FIND OFFENSIVE. THE VIEWS EXPRESSED IN THIS EPISODE ARE THE OPINIONS OF THE HOST AND GUESTS.

Welcome to a special series of episodes of #ToppleUncaged!

Every week, The Canary will be bringing you a new podcast on the media landscape; hosted by me, Steve Topple. But this week is different. Because it’s both Millions Missing and ME Awareness week. So, The Canary and I are bringing you content across seven days.

Millions Missing

Myalgic encephalomyelitis, commonly referred to as ME, is a chronic systemic neuroimmune disease.

It affects at least 17 million people worldwide and around 250,000 people in the UK. It has been fraught with controversy. For decades – and often still to this day – the medical profession has not properly recognised it. People living with ME have been disbelievedstigmatised, given incorrect treatment, or told it’s ‘all in their heads’. But campaign group ME Action Network (#MillionsMissing) and charity the ME Association (#MEAwarenessWeek) aim to change this.

In the second of six daily podcasts, I caught up with practising doctor, author and campaigner Dr Sarah Myhill. She has been a consistent advocate for people living with both ME and the also the deeply misunderstood chronic fatigue syndrome (CFS). She has written several books and is a seasoned speaker on the disease. We discussed what she thinks ME is, her treatment approach, her campaign called MAIMES and why she thinks the disease has been subject to such scandals.

Listen below:

FULL SHOW NOTES:

CanaryPod: Topple Uncaged meets… the Millions Missing: Dr Myhill

LISTEN TO MORE EPISODES AND INTERVIEWS FROM THE #ToppleUncaged PODCAST:

http://www.thecanary.co/topics/canary-pod-topple-uncaged/

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3 comments

  1. Liz W · 16 Days Ago

    That’s one motivated woman. It would be great if more doctors showed a similar commitment to their ME patients instead of palming them off with CBT and GET.

    Like

  2. liz W · 16 Days Ago

    Just one thing – could the title to the podcast on the Canary be a bit more hard hitting? “CanaryPod: Topple Uncaged meets… the Millions Missing: Dr Myhill ” wouldn’t especially draw me in if I didn’t already know what it was about. People need to know that the NHS denies thousands of ME patients good healthcare and research into their illness, leaving them to suffer in the most appalling way. They are shut out of the NHS. This is a national scandal, and should be flagged up as such. ‘Millions Missing’ is a great campaign slogan when accompanied by pairs of shoes and people to explain what it’s about, but on its own doesn’t convey enough to those who don’t already know (IMO).

    Like

  3. Liz W · 16 Days Ago

    How about something like – “ME- Millions Missing…. and NHS care-blocking scandal” ?

    Like

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