THIS PODCAST CONTAINS LANGUAGE AND CONTENT SOME PEOPLE MAY FIND OFFENSIVE. THE VIEWS EXPRESSED IN THIS EPISODE ARE THE OPINIONS OF THE HOST AND GUESTS.
Welcome to a special series of episodes of #ToppleUncaged!
Every week, The Canary will be bringing you a new podcast on the media landscape; hosted by me, Steve Topple. But this week is different. Because it is both Millions Missing and ME Awareness week. So, me and The Canary are bringing you content across seven days.
Myalgic encephalomyelitis, commonly referred to as ME, is a chronic systemic neuroimmune disease.
It affects at least 17 million people worldwide and around 250,000 people in the UK. It has been fraught with controversy. For decades – and often still to this day – the medical profession has not properly recognised it. People living with ME have been disbelieved, stigmatised, given incorrect treatment, or told it’s ‘all in their heads’. But the campaign group ME Action Network (#MillionsMissing) and charity the ME Association (#MEAwarenessWeek) aims to change this.
So, in the first of six daily podcasts I caught up with campaigner and mother of a child with ME, Tina Rodwell. We discussed how it affects children, how government departments deal (or don’t) with them and their families and the countless barriers and prejudice they face.
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LISTEN TO MORE EPISODES AND INTERVIEWS FROM THE #ToppleUncaged PODCAST: